The Avicenna Alliance fully embraces “Nothing about us without us” as a guiding principle to achieve person-centric healthcare. We champion Public and Patient Involvement (PPI) to unlock the full potential of research and innovation activities such to ensure relevance and benefit to patients, carers, and society as a whole. PPI will further enable our systematic stakeholder approach to foster in silico medicine technology adoption, mitigate risks of attrition and associated costs, and most importantly, accelerate the translation of research into positive societal impact through collaborative co-creation in our journey towards better healthcare.
Particularly, the PPI task force (TF) has been established within the Policy Development Working Group to pioneer PPI for in silico medicine. Our integrated approach based on 1. creating PPI awareness, 2. supporting implementation, and 3. enabling the requisite culture change has led to a portfolio of tangible outcomes, including, e.g., a full day dedicated to “Involving and serving the patients” at the Avicenna Days (AAD) 2023.
You can find links to our PPI initiatives below, including position papers, workshops, and conferences, with plenty more to come. If you are a patient or PPI-focused organization, join us in reshaping the future of healthcare – send us a message and we can take it from there. Your voice matters, and together, we can drive meaningful change in Digital Health.
Our PPI Initiatives
- Avicenna Days 2023, Day 3: Involving and serving the patients (Oct 2023)
- Position Paper: Public & Patient Involvement for in silico medicine (Jul 2023)
- Survey Report: A snapshot of current practices and perceptions of Public & Patient Involvement (PPI) within the Avicenna Alliance (May 2023)
- VPH2022 Conference Workshop: Public and patient outreach and engagement for in silico medicine (Sep 2022)