Avicenna Alliance: enhanced knowledge, improved decisions, better outcomes
FULL MENU

Public & Patient Involvement (PPI) Task Force

Public & Patient Involvement (PPI) Task Force

BACK

Public & Patient Involvement (PPI) Task Force

Mission: Empower the public & patients to understand the potential of in silico medicine, improve healthcare creating ‘user demand’, encourage greater funding and drive broader clinical and regulatory adoption for enhanced impact

We hear a lot about patient centric medical care, but shouldn’t that be preceded by patient centric medical research? The Public and Patient Involvement (PPI) task force of the Policy Development Working group is the first internationally coordinated PPI initiative with focus on
in silico medicine and strives to catalyse effective research and innovation translation into positive societal impact through co-developing new technologies together with the patients and the public.

Adopting an evidence-based approach to ensure we best serve the AA members’ needs, we first evaluated the current PPI practices and perceptions through an internal
survey, which revealed a relatively low level of awareness, heterogenous perceptions, and an ensuing risk of missing out compared to other medical areas.

Based on these insights, we then prepared a roadmap for PPI implementation driven by the triad of raising PPI awareness, supporting activities, and kindling the requisite culture change for crafting an effective PPI environment, as described in our very first position paper.

A first major achievement in realising this roadmap are the Avicenna Days (AAD) 2023, for which we have secured a diverse Day 3 programme with international PPI pioneers, both from within and outside the AA, who presented case studies and learnings based on how they have created strategic advantage for their organisations through societally engaged research and innovation.

The plain language in silico medicine glossary, published in January 2025,translates complex, technical language into terms understandable by non-experts, aiming to empower patients and the public with a clearer understanding of in silico medicine and its potential impact on healthcare.

Goals

  • Define a multi-stakeholder working approach (i.e. Community Advisory Board) for in silico trials’ opportunity with focus on patient engagement (PE).
  • Build a PPI Roadmap, identifying stakeholders and establish systematic engagement.
  • Create public awareness through sustainable mechanisms, such as, medical websites and social media.
  • Build trust in the technology to accelerate adoption of in silico medicine by drawing on case studies (e.g., diabetes).
  • Provide guidance to members submitting digital evidence to competent authorities regarding the representation of the public & patients’ interests.

Cyrille Thinnes

Cyrille Thinnes

Co-chair of the Public & Patient Involvement (PPI) Task Force

Researcher, National University of Ireland, Galway NUI Galway

READ BIO
Steven Levine

Steven Levine

Co-chair of the Public & Patient Involvement (PPI) Task Force

Director of Virtual Human Modeling, Dassault Systèmes

READ BIO

NEWS

News In Silico Medicine: A New Scientific Discipline Emerges in Greece

In Silico Medicine: A New Scientific Discipline Emerges in Greece

On December 21, 2024, Research Professor Georgios S. Stamatakos, a great pioneer of in silico oncology, delivered a lecture in Sparta, Greece, exploring the emergence, evolution, and clinical potential of in silico medicine.

News Introducing the plain language in silico medicine glossary

Introducing the plain language in silico medicine glossary

As in silico medicine continues to advance, new concepts and terms emerge rapidly—often before widespread consensus is established. To make this transformative field more accessible to all the stakeholders including the patients, we are pleased to present the “Plain language in silico medicine glossary”, now published on Zenodo.

News Happy New Year, 2025, the Millennium Year

Happy New Year, 2025, the Millennium Year

Dear Avicenna Alliance members, As we welcome the new year, we hope you had a joyful holiday season filled with moments of relaxation and happiness with your loved ones.

Sign up for our monthly newsletter!

Sign up for our monthly newsletter!

Fill in the fields you find below

Avicenna Alliance is an initiative of:

Avicenna VPH

© 2018-2025 Avicenna Alliance | powered by We Berry